Saturday, December 26, 2009

A Christmas Prayer

Silent night! Holy night!
All's asleep, one sole light,
Just the faithful and holy pair,
Lovely boy-child with curly hair
Sleep in heavenly peace!
Sleep in heavenly peace
As I was surrounded yesterday by family and friends, celebrating the Gifts of Christmas, I kept finding myself singing my most favorite Christmas Carol ~ Silent Night
As I returned from a day away from the computer ~ I first journeyed to Reece's Rainbow, as my heart and soul have such a calling to help these children who are awaiting their forever families.....the only reason they are orphans is because they are deemed less than perfect by the society they live in.
My joyous heart was quickly saddened to read of the passing of a beautiful soul - a man who has been called to the same journey of welcoming these precious children into his own heart and home and to raising awareness and opportunities for other families to find the way to adopt.
As you move through the next few days, I ask this one last Christmas Wish of you......to say a prayer for Derek Loux's family and friends, as they lay to rest their beloved husband, father, son, brother and friend................and to read this message of Redemption by Derek Loux posted on The Sumbo Family Story Blog.


Redemption by Derek Leux
Friday, December 12,
2008

Renee' and I are sitting in the office of a telephone company in
Novograd Valenski, Ukraine, using wireless internet. We are in the middle of
adopting three special needs boys from an orphanage here. Two of the boys have
Down Syndrome. Roman is high functioning, energetic and happy. Dimitri has
serious mental retardation, failure to thrive, and though he is five years old,
he is the size of a 1 year old. He has sores on his face, a distinct smell of
death on him, and yells out if we try to do anything with him other than hold
him. Because he has less ability to respond and learn, he naturally gets less
attention and care from the orphanage workers in this world of limited
resources. The harsh reality of the "survival of the fittest" principle is a
life and death struggle that this little boy is losing fast. Our third boy
Sasha, is a brilliant six year old who has Spina Bifida (the condition our son
Josiah died from in 1996). He is like a learning sponge that can't get enough!
He is happy and alert and thirsty for knowledge and experience. So with two of
our boys, we get an immediate return on any investment we make. With Dimitri,
there's not much immediate gratification. In fact, it's unknown when and if
there will be a return at all. This is the kind of situation that makes the
carnal, fallen, human reasoning think, "Why try? What's the point? What will
this produce? What good will this do? Why not select a boy who has more
potential? This looks like a lost cause.

Two days ago we drove for hours
into the Ukrainian countryside to the village where Dimitri was born. We met
with officials there and signed papers and answered their questions. We also
went and saw Dimitri's house. The day had been long, we were still recovering
from jet lag, I was beginning to really miss my six daughters at home and all
the familiar things our fragile human hearts entangle themselves with in feeble
attempts to feel secure. Sitting in the dark on our very long drive back to
Novograd that night, the Holy Spirit began to whisper to my heart, and new
understanding about redemption began to take shape.

I was thinking,
"Man, adopting this little boy has been so much work. This is exhausting,
expensive, uncomfortable… and it doesn't feel very rewarding right now." What am
I doing in some little Soviet car in the dark, in the middle of rural Ukraine in
frozen December, as the driver dodges cats and potholes? What if Dimitri doesn't
improve at all? What if we get "nothing" out of this? Ahhh, there it was; that
dark, fallen, unreedemed, selfish human love, rooted in the tree of the
knowledge of "good and evil". The love the Greeks called "erao" love. The love
where we treat someone as precious and treasured for what we can get out of it.
This is unlike "agapeo" love, the God kind of love that treats someone as
treasured and precious for their good, not for my good. It's when I love a
person in order to meet their needs, having no expectation of them meeting any
of my needs. At a whole new level, God is working His kind of love into my weak
heart, and He's using little Dimitri to do it.

On the drive home that
night, the Lord whispered in my ear, "This is Redemption. Derek, do you know how
far I travelled to get you and bring you back? I had to be separated from my
Son, in order to get you, just like you are separated from your children in
order to get these boys. Do you know how expensive it was for Me to purchase
you? It cost me everything. Do you know how broken, sick, damaged, twisted,
dirty, smelly, and hopeless you were? And at the end of it all, you had nothing
to give me or add to me. I did it for you. I emptied myself and became nothing
so that you could have it all. This is redemption.

My friends, adoption
is redemption. It's costly, exhausting, expensive, and outrageous. Buying back
lives costs so much. When God set out to redeem us, it killed Him. And when He
redeems us, we can't even really appreciate or comprehend it, just like Dimitri
will never comprehend or fully appreciate what is about to happen to him… but…
he will live in the fruit of it. As his Daddy, I will never expect him to
understand all of this or even to thank me. I just want to watch him live in the
benefits of my love and experience the joys of being an heir in my family. This
is how our heavenly "Papa" feels towards us.

Today, settle your busy
heart down and rest in the benefits of redemption. Enjoy the fruits of His
goodness, and stop trying to "pay Him back". You'll never get close you goofy
little kid.


You can visit their family blog Here

Wednesday, December 16, 2009

~Remembering~

Annette and I

Don't walk in front of me, I may not follow.

Don't walk behind me, I may not lead.

Just walk beside me and be my friend.-- Albert Camus

Rest in Peace my dear friend......Rest in Peace

Saturday, December 12, 2009

A Wish Come True

As you all know ~ from my post below~ my Christmas Wish this year is for family and friends to donate to Reece's Rainbow Angel Christmas Tree fund that helps with the grant funds for precious children with Down syndrome who are waiting to find their forever homes.

A dear friend and her beautiful family have been called to not only donate to the Angel Tree fund, but to open their hearts and home and adopt one of the waiting Angels.

Please visit this blog and follow the magical journey that is just beginning ~ Loving Alina

and a very special aspect of this adoption is that Alina is in the same orphanage as my sweet girl, Nadine ~ which means Full of Hope/Hopeful.

If you can make a donation to Alina or Nadine's grant funds, you would make this Momma's heart quiet a bit ~ knowing that two little Angels ~ who are together many thousands of miles away from here, have a chance at life.

What a glorious Christmas Gift that is ~ Life!!!!!!!!

Tuesday, December 01, 2009

My Christmas Wish

This
This precious Angel is my Christmas Wish.........I so want to adopt this little girl, My heart has already adopted her, but sadly the best thing I can do is raise awareness to the Reece's Rainbow Christmas Angel Tree Project and ask for donations to her fund to help her future Forever Family gain the ability to travel and adopt her. Her name is Nadine and she is truly a precious Angel.
Click here to visit Nadine's page or the pages of all the other precious little ones waiting for their forever families to find them and welcome them into their hearts and homes.

Thursday, October 29, 2009

31 for 21

I started this blog about our journey with our daughter, Emma Sage, four years ago as a way of sharing with the world the 'Normalcy of Difference'

Emma Sage is now seven years old and is an amazing little girl. Her life journey has been filled with so many exciting adventures. She loves life and is not shy about living it to the fullest.

For us, Down syndrome has been a different journey, but one that has been embraced and celebrated and one that I would not change for the world, even if I had the opportunity to do so.

Emma Sage has a way of touching people’s lives……and that I believe is one of her greatest gifts.

I get e-mails and notes, that bring me such great joy.......from parents who have found their way to this blog and by doing so, it has given them a special gift, a glimpse in my daughters life, which is a life well lived......because it is her life and we are here to love her, nurture her and celebrate her for exactly who she is. These notes and e-mails are the reason I blog, as when I first was alerted to the fact that my baby might have Down syndrome, I wanted a 'glimpse' and at that time, the Internet was new and there were not many family blogs/websites out there that focused on their child with Down syndrome. I had found a wonderful online community at ParentsPlace, but there were really not any other communities out there....slowly that began to change.

One website that I found, and visited again and again, was the site of my dear friend Betsy. Betsy has a wisdom about life that is so powerful and beautiful. Her daughter Paige is a beautiful little girl who is loved dearly.

So, as I finish up this months celebration of Trisomy 21 [aka. Down syndrome] I wanted to say 'Thank you' ......to all the Mothers, fathers, sisters, brothers, aunts, uncles, grandparents, friends....I have met along this journey.

I want to thank Barbara Patton, who through sharing the love she had for her little brother, my first real 'glimpse' into Down syndrome. I want to thank the producers of 'Life Goes On' for producing a mainstream TV show staring a young actor with Down syndrome and a wonderful 'glimpse'....I want to thank Nicole, who was the first person to reach out to me when I posted a question about 'nuchal translucency' and for sharing your precious daughter with me and giving me a 'glimpse' and I want to thank all the people who are now blogging and journaling about Down syndrome, as I believe, this is the greatest way to advocate and celebrate.

Happy Down syndrome Awareness Month...........may the awareness last all year

Tuesday, October 27, 2009

31 for 21 - Pure Joy

Pure Joy…….

I'm not a wordsmith or writer by any stretch of the imagination. I journal about my life journey raising my children, more specifically in this blog, about my youngest daughter who was born sporting an extra chromosome on her 21st pair.

I find that photographs are the best way for me to help tell part of our story, as a photograph says a thousand words……..and these ones that I took the other day show the expression of 'Pure Joy' that Emma Sage exhibits daily.

Last night, after dropping Otto off at Boy Scouts we had one of those moments that just radiated her joy…..her pure joy of life.

Emma Sage is very independent and she likes to do things herself……and of course I oblige, as raising strong, confident and independent children is part of my focus as a mother [it is in the job description so I have read]. She wanted to stop and get 'nick-nacks'…..orange ones. [ie Tick-Tacks] so we stopped at the pharmacy and Emma Sage grasped her money tightly in her hand and headed into the store on her own [we are able to park so we can watch her every move] .

She gathered up her 'nick-nacks' and something else we could not tell and paid for her purchase, chatting away with the clerks and then headed back out to us waiting in the car. She skipped out, smiling from ear-to-ear and brought her purchases to the car. A pack of gum for her sister "It is your favorite kind" she says……and a quick little 'shake' of her 'nick-nacks' and the giggle and smile that just melts your heart.

october2009thingsandsuch 041
Pure Joy……..the only words perfect enough to describe a moment in the life of my little girl.

Saturday, October 24, 2009

Post Cards for Emma Sage

Postcards for Emma Sage: Can you help my daughter collect a postcard from every state?

We have gotten cards from a few states & Countries [Thank you SO much!!!] but we are hoping to get all 50 states.

Emma Sage is fully included in her 2nd grade class and they are trying to get postcards from all the states [and other countries ~ The Philippines ~ Thank you Cheche!] as they are working on a geography lesson [and maps]. I would love for her to have a collection of all 50 states. Can you spread the word to family & friends who might like to help out.

The postcards should be sent to:

Emma Sage Hintz
212 Maple Lane
Califon, NJ 07830

The states we are missing are:

Alabama Alaska Arizona Arkansas Colorado Delaware Georgia Hawaii Idaho
Illinois Indiana Iowa Kansas Kentucky Louisiana Maine Maryland
Massachusetts Michigan Minnesota Mississippi
Missouri Montana Nebraska Nevada New Hampshire New Jersey New York
North Dakota Ohio Oklahoma
Oregon Pennsylvania Rhode Island South Carolina South Dakota Tennessee Utah
Vermont Virginia West Virginia Wisconsin Wyoming

Thank you so very much!!!

She got an envelope today from Washington, D.C. [with a postcard in it from Washington State} from the House of Representatives!!!! Thank you Congresswoman Cathy McMorris Rodgers!!!!

Wednesday, October 21, 2009

31 for 21 ~ Camp PALS

Camp PALS is a 1-week summer camp for teenagers and young adults with Down syndrome held at Cabrini College in Radnor, PA. Campers and volunteer counselors room together for the week in dormitories at the college.

My Katrina is now a head counselor and my Greta is a counselor. Both girls will attest to the fact that this is one of the greatest highlights of their year. While they come away from the week exhausted.........they also come away each years saying that it was the best experience ever......year after year.

A few weeks ago, Katrina brought Emma Sage with her to Princeton University to meet up with other campers and counselors from Camp PALS as they were trying to have Camp PAL 'reunions' throughout they county.

Of coarse Emma Sage had the best time hanging out with the campers and counselors [have I ever mentioned that this kid thinks she is a teenager?

Jenni Newbury, one of the founding Directors adores Emma Sage and told her that she can be a Mascot this year and come to camp on Friday afternoon and spend the night and I'll join them for closing ceremonies.

Well, a few days later, Katrina was trying to 'bribe' her sister into doing something she wanted her to do [like go get her a glass of O.J. or something] and she wasn't getting her little 'slave' to cooperate, so she said "Well, then you CAN'T go to Camp PALS" to which Emma Sage replied "Yes, I CAN, Jenni BLUEBERRY, said I could"

bawhhahahahahahhaha........

I guess Emma Sage told her sister 'what's what', and I love how she remembered her last name sounded like a 'berry'........

You have to check out Camp PALS.......and their blog too!!!!

Monday, October 19, 2009

Saturday, October 17, 2009

31 for 21..........Siblings

Well, I realize that I have not been 'writing' much about living and loving life with Emma Sage. So what is my excuse? Really, nothing, but everything.

Life has been busy, very, very busy.....and this Momma tends to file away all the photographs that I take daily [and let me tell you, the bandwidth for my .jpeg files is quite large] and say "I'll get to them later....I'll sit and post later." Well, later comes and this tired Momma is snuggled in bed before 9pm these days; as 6am rolls around way faster than it did when I was younger.

Yes, I'm getting old and not able to keep up with everything as well as I did in my younger days. This whole 40-something, 4 children, a house, a spouse [who looking for a job, ie. extra work for me assisting in this whole process] 3 dogs, 3 cats and lots of activities.....Oh, yeah, and I forgot, a job outside the home that now has me away from my beloved little cottage over 10 hours a day.

So ~ 9pm is bedtime and this blog has been neglected.

Good news is: this is the only thing being neglected!

But I realize every night, after Emma Sage is finished her homework, squeaky-clean from her bath and cuddling with me after her big pile of books and she begins to tell me stories of her days, of her adventures, of her likes and dislikes.....of her dreams!!!! I realize all the funny and delightful conversations that we have and that I really must be writing down and sharing on her blog [as this is her journal of her life] and as history has shown us all.......time has a way of letting us forget, especially the delightful and wonderful details of childhood.

So here is a little gem to share.

Emma Sage has found her siblings 'All About Me' books that they each made in 1st grade. She loves to read them and re-read them. She also has one that she made about herself........these are cute little books that the curriculum has included that each child is interviewed during their 'Star of the Week' and then their classmates write and illustrate a facet of their classmate. The books are then laminated and spiral bound. One of my favorite treasures of the kids school journey.

Well, this morning, Katrina is getting ready for work. She walks in on Emma Sage and I in the bathroom doing her hair and says "How does this outfit look?" and continues "My favorite color is black"......so I smile and say it is an adorable outfit [it was, cute and trendy and since she is managing the girls clothing store Justice....perfect for work].

Emma Sage on the other hand, stops completely what we are doing and says - very sternly "Black is NOT your favourite color, wait right here, I'm going to get Katrina's book"....she walks into the TV and Katrina and I start to giggle, as we realize what she meant......she gets out Katrina's 1st grade book and opens to the page that says "Katrina's favorite color is purple" and comes back into us to prove that she is write and that Katrina is wrong!!! hahahahahahaha

We laughed so hard!!!

Thank you Emma Sage for setting your sister right!!!!!

Friday, October 16, 2009

31 for 21 .....He is Ulysses, not Down syndrome

He is Ulysses, not Down Syndrome by Desiree Lowit.

Submitted by Jennifer on Wed, 03/02/2005 - 6:00am
Posted in POVReal LifeSpring '05


My son was born when I was 22 years old. He was conceived during one freezing winter in Lake Tahoe, CA.

When I discovered I was pregnant, my immediate reaction was that I was too young to have a baby and that I should have an abortion. When I spoke with Ethan, my boyfriend at the time and father-to-be, he did not share my concerns and thought having a baby was a great idea. Looking in a mirror, admiring my new, baby-full appearance, I considered what he said and immediately fell in love with our unborn child.

I got a great job as a waitress. I spent the entire summer eating healthy, taking my vitamins, practicing pre-natal yoga, hiking several miles every day, swimming in the lake, resting, reading and listening to beautiful music.

Wednesday, October 14, 2009

Towson Parents 2009 046

My two little Witches.......

31 for 21.....-Mom come quick-

Those were the words I heard last year as Greta and Emma Sage were watching 'So you think you can Dance?'.......of coarse as a Mother your first response to a scream like this ~ with such urgency ~ is to painic and pray nothing is terribly wrong as you go running towards the voice calling.

and here is what I saw:




I was hoping someone put it up on YouTube.....

and Emma Sage, my little dancer was dancing away, getting ready for the day when she auditions and Greta was sitting with the widest grin across her face and me, I cried.....tears of joy and happiness to see this young man on national TV.

How cool is this!?!

Monday, October 12, 2009

31 for 21 - Can-Do Abilities





Creekside Cookies & More

Simply Adorable Blankets

Saturday, October 10, 2009

31 for 21 - Reece's Rainbow

The primary goals of Reece's Rainbow is:

To raise awareness regarding the plight of children with Down syndrome in foreign orphanages and their availability to be adopted

To raise adoption grant donations for each of our waiting children

To seek new adoptive families for orphans with Down syndrome internationally

To provide adoptive families with additional fundraising opportunities.

To fund humanitarian aid opportunities and improve the quality of life of our children waiting to be adopted

To fund educational and therapeutic opportunities for orphaned children with Down syndrome living in foreign orphanages

To fund and facilitate the development of new Down syndrome birth parent support groups in foreign countries, thereby decreasing the number of children placed in orphanages

To enact social change abroad about children with Down syndrome and other special needs through the testimony of adoption


Grab Button


I know all of our pocketbooks are stretched thin these days, and my hope of hope at one point in my life journey, was to adopt another child with T21, but as I have aged. my dreams of adopting in our family fades a bit....BUT the one thing I can do, is give little bits to a waiting child's fund, so that when their forever family comes along, the cost of adoption is offset by Reece's Rainbows sponsorship fund.

Think about sponsoring a child that is waiting for a forever home this holiday season and get a beautiful ornament to hang on your tree to remind you of the gift of life!

If you have a moment: Visit this blog~
Newbold Family Adoption
as it is one of the sweetest tributes to Down syndrome and the power of love, faith and prayer. A precious angel named Chloe graced the Newbold's life, only to be taken from them so quickly.....but Chloe gave a great gift in her short life, a love and understanding to her parents who loved her so dearly, to adopt two orphans, John Paul and Dasha. I promise you, you will leave this blog with a heart that has swollen in size from reading about the gift of Down syndrome in a families life.