First, I am so humbled by the outpouring of love, support and friendship being offered up to my little girl. She [and we] are so Blessed.
Secondly, we have great news, in the fact that the doctor believes it is viral and not leukemia.
They did find one 'blast, abnormal cell' in the marrow, but one is not considered leukemia, so they truly believe we are dealing with a viral infection. What it is, they don't know.
I am sighing a huge sigh of relief......keeping my faith that in a little while, this virus will be behind us, and my little dancer will be back to dancing.
I had mentioned in my post below on how my eyes, heart, mind and soul have been clouded and I needed clarity to see the signs around me.....and after praying it is amazing the signs I am seeing.
The biggest sign.....The outpouring of love....how incredible and what a testament to friendship and community.
as I sat yesterday after the call that said that the smear had found two abnormal cells/blasts I picked up the newsletter I had grabbed in the lobby of Goryeb's Children and open it up.......and this bright glimmer of hope came to me as I saw the smiling face of Melissa Riggio, and an article on how the Down syndrome community has come together to provided the Valerie Fund Children's Center with the largest gift ever to benefit the fund.....it went on to say "Some contributed because they were moved by her story, but many other parents of children with Down syndrome gave because they were awed by her many accomplishments."
It was such a huge sign, I realized that Emma Sage is part of this incredible group of human beings, those born with an extra chromosome on their 21st pair.........our children have a gift, one that touches humanity and brings such clarity to everyday life.
I know my little girl is going to be OK......I just know it.
I know she still needs prayers, but I know GOD has already begun to answer the biggest one I had, "Please let this be viral and not cancer"
My heart is also so very sensitive right now to every parent who has to face medical challenges with their children........I am forever changed.
Emma ~ One who Heals
Sage ~ One with Great Wisdom
Emma Sage is our little girl that is blessed with a little extra ~~ chromosome that is ~~ on her 21st pair.
26 comments:
I'm so relieved..so worried for you all.
Having been in the "worst case" scenario, I was so hoping that it wouldn't be the case for you all.
What a day of contrasts..yesterday I found out that my friend's son is dying from cancer..and they are bringing him home to die.
And then that you are bringing Emma Sage home and it's just viral.
I wish ALL children could get the good news..kwim?!
Hugs and great sighs of relief.
Amy
Thank you lord, I haven't posted in awhile, but I've been thinking about Miss Emma Sage ever since I heard she was sick. I almost cried when I read that what she has is viral and not leukemia. I'll keep praying that she clears this virus very quickly!
TM, we are so happy for you ALL! I hope Emma is starting to feel better now that she is home surrounded by love! Please give her giant hugs from all of us, especially Ryan! We will continue to keep her (and you!) in our thoughts and prayers. LOVE YOU!
Whoo Hooo, good news, will continue to pray for a complete recovery.....
Hugs to all
Fran
So glad to hear she is home. I text you from my phone the other day. I'm guessing you were overwhelmed by calls.
give ES a kiss and a hug from us.
Emma Sage, may you BE HEALTHY and STRONG ~. Sending lots of prayers and HEALING ENERGY your way.
Thank God for the wonderful news!!!. Tara Marie, thank you so much for the update.
Much LOVE :)
Praise GOD! I was getting worried when you didn't update... and while I would have walked the journey with you, and helped however I could, I was praying VERY hard I wouldn't have to. NO child should have to have poison pumped into their body to make them better. I'm so excited for you. It's times like this that a virus is a HUGE blessing!
I am soooo glad to hear this! Hang in, she will get better quick. And we are all sending mental hugs to all of you.
f.
So glad she is home.
Thank God Tara Marie, thank God! What beautiful news this is -I am so happy to read this!!!! Give that gorgeous girl lots of hugs from me, Lily and Sophia and lots of kisses too! Sometimes God hears us and gives us hope.... Amen to answered prayers!
Love,
Lisa
Tara Marie breath in and breath out just like your adorable little girl. We will continue to pray for Emma Sage and your family. Please give her a big hug from us.
Hugs Kay and Drake
Can you hear me breathing?!!! A HUGE sigh of relief! I am so glad, we'll take virus anyday! I hope she gets completely over this soon and is back to dancing! Hugs.
Tara and Rick,
Thank God!! Give her a kiss for us!
love, Linda and Tom
So glad to hear that it is viral.
I am so thankful to the Lord to hear that it is a virus. I'm praying that God will heal her precious body and she will be dancing in no time at all!
big hugs~
Traci & Ashlyn
Keeping you guys in our prayers. Please know how much we love you.
I am so grateful that it is not Leukemia.
Emma Sage will continue to be in our prayers that this virus clears up quickly, and that she is dancing again soon.
Loves,
Pam and Rhett
I am so glad she is home in your arms where she belongs. It truly is humbling to know how much our children touch the lives of others - I believe that is why God has given them to us - to allow us to see the world through new eyes, in a new way.
How amazing to have such a purpose driven life right from the start. I'm proud and honored to be part of such a sisterhood, and immensely happy to have you, my friend, along on the journey.
Continued prayers for her fast recovery - know how much we love you both, and how many tiny little hands with just a little extra something have been held together in prayer for you...
(((hugs)))
Betsy
Welcome home Ms. Emma Sage. :)
Love and kisses,
Cheche
Philippines
Fran pointed me over here to your blog and I just want to add to the stash of prayer partners for your little girl, and you entire family. May God bless her, heal her, keep her, and may be give you peace and strength. Our Almighty Father is the source of all power, grace and mercy, and may he rain it down on precious Emma Sage...
What wonderful news! I'm so happy for you and Emma Sage. She must be thrilled to be home!
Such a relief for me to read this! Hug that lil girl for me!
Dear Emma,
We are sending you love and prayers from Massachusetts.
Lauren, Maggie and Scott Sprague
I have hesitated in posting as I am a mother walking that walk of cancer with a child.A child who happens to have Down syndrome and leukemia.I feel I am often source of fear for others rather than a source of hope but that is exactly what I want to say:hope above all things.Well,faith gets you there as well but hope is what maintains us on our journey.Sending you our blessings of quick healing for Emma and that your uncertainty be replaced with peace ... it already seems as though that is the case.Prayers continue for you and most especially your beautiful daughter.
Breathing a sigh of relief. Glad it was just a virus.
So happy to hear your little dancer is out of the hospital, and with good news to boot! There is no place like home!
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