Emma ~ One who Heals
Sage ~ One with Great Wisdom
Emma Sage is our little girl that is blessed with a little extra ~~ chromosome that is ~~ on her 21st pair.
Tuesday, October 18, 2005
More Food for Thought.....
More Food for Thought.....
Another article that asks hard questions and points out a very sad fact.
I'm ashamed to say that if we had none prenataly of Callum's diagnosis we may very well have terminated. Mostly because the image I had of Down syndrome was so out dated and I really didn't think that I would be capable of raising a child with special needs. I had the triple screen test and I remember being so relieved when it all came out normal. When Callum was born I was scared but also in love. Now we have him I couldn't imagine my life without him.
It's up to us as parents of kids with special needs to make sure that they grow up as full members of their families and communities so that people can actually see what Down syndrome really means.
I'm still pro-choice but parents need to be given balanced up to date information about any condition that is diagnosed pre natally rather than just the medical facts.
CJ,,,I've been so excited at the thought of your TWO little girls coming to join your heart and home.
Naomi,,,,
I don't think you have anything to be ashamed of....society has instilled this fear and painted such a dark, scary picture, that it will take time,,,in pictures, in words,,,in being out fully involved in family, school and community for the perception of T21 being such a horrible thing to be dispelled....BUT it will,,,through parents such as the likes of all of us....sharing our lives,,,sharing our fears, our joys, our overwhelming good blessings.
I am trying to put together a section on Emma Sage's website that speaks from the hearts of mothers such as yourself that had held these misconceptions and fears and might have choicen a different path, but through destiny did not,,,,,and share how much richer their lives are today. Would you be interested in writing a piece for this section?
2 comments:
I'm ashamed to say that if we had none prenataly of Callum's diagnosis we may very well have terminated. Mostly because the image I had of Down syndrome was so out dated and I really didn't think that I would be capable of raising a child with special needs. I had the triple screen test and I remember being so relieved when it all came out normal. When Callum was born I was scared but also in love. Now we have him I couldn't imagine my life without him.
It's up to us as parents of kids with special needs to make sure that they grow up as full members of their families and communities so that people can actually see what Down syndrome really means.
I'm still pro-choice but parents need to be given balanced up to date information about any condition that is diagnosed pre natally rather than just the medical facts.
CJ,,,I've been so excited at the thought of your TWO little girls coming to join your heart and home.
Naomi,,,,
I don't think you have anything to be ashamed of....society has instilled this fear and painted such a dark, scary picture, that it will take time,,,in pictures, in words,,,in being out fully involved in family, school and community for the perception of T21 being such a horrible thing to be dispelled....BUT it will,,,through parents such as the likes of all of us....sharing our lives,,,sharing our fears, our joys, our overwhelming good blessings.
I am trying to put together a section on Emma Sage's website that speaks from the hearts of mothers such as yourself that had held these misconceptions and fears and might have choicen a different path, but through destiny did not,,,,,and share how much richer their lives are today. Would you be interested in writing a piece for this section?
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