tag:blogger.com,1999:blog-8656694.post6328164144793737260..comments2024-02-13T00:29:04.591-08:00Comments on EmmaSage: 31 for 21 - Day EightAnonymoushttp://www.blogger.com/profile/12628921554027431376noreply@blogger.comBlogger6125tag:blogger.com,1999:blog-8656694.post-91522603683992416572012-12-15T13:23:15.236-08:002012-12-15T13:23:15.236-08:00What a wonderful post...I cold really relate to it...What a wonderful post...I cold really relate to it...thank you for sharing it.Shelleyhttps://www.blogger.com/profile/15306619273869164248noreply@blogger.comtag:blogger.com,1999:blog-8656694.post-7063668370028861182012-10-16T04:05:30.278-07:002012-10-16T04:05:30.278-07:00Excellent post and the connecting applies to the l...Excellent post and the connecting applies to the little ones too--families digesting the diagnosis & facing early struggles medically, emotionally or with extended family. <br /><br />I have a long to do list that includes just THIS type of meetings and I have felt that the ASL is sooooooo important as noted to talk to peers and have peers communicate to each other. Kids developing at more advanced paces can help those at other stages. Caring for the elderly population with and without DS is a skill we could all work on - again, all of us with & without DS. It's one of those less desirable but incredible jobs. <br /><br />The unfortunate reality is that regardless of the skills & abilities, at this point early onset Alzheimer's will face all of our families barring a cure between 40 & 60 years old. It's a whole life well or challenged but in the end and for many without DS we all need help & become disabled most likely. <br /><br />There is a new DS author whose book highlights love OVER abilities. It's EXACTLY your friends comment I haven't read the book but the interview in the blog with a little moxie (it was interviewing two authors of amazing DS stories) from August I believe was INCREDIBLE. No time to hunt links but check out or contact the moxie mom!<br /><br />I would LOVE to see this post go viral. :)Phttps://www.blogger.com/profile/16301340414658686677noreply@blogger.comtag:blogger.com,1999:blog-8656694.post-71409883056590316872012-10-09T15:03:27.420-07:002012-10-09T15:03:27.420-07:00Great post, and poignant for so many of us.
For t...Great post, and poignant for so many of us.<br /><br />For the mother of the 7-year-old who doesn't chew...I wish she'd email me!!! I have an almost 6-year-old in that chewing-issue boat and I've never found another who struggled this much to this age. I'd sure love to connect, if you happen to see this. braskasmom atG mail. comRKhttps://www.blogger.com/profile/11259757888643034394noreply@blogger.comtag:blogger.com,1999:blog-8656694.post-57641064428900337682012-10-09T09:12:29.898-07:002012-10-09T09:12:29.898-07:00Absolutely wonderful post. Thank you.Absolutely wonderful post. Thank you.Nanhttps://www.blogger.com/profile/10375461078977866753noreply@blogger.comtag:blogger.com,1999:blog-8656694.post-30742219243287518042012-10-09T07:52:14.447-07:002012-10-09T07:52:14.447-07:00I'd like to respond to the mother of the 7-yea...I'd like to respond to the mother of the 7-year old boy still on a feeding tube and in diapers. Your son is beautiful and deserves to see his brothers off. The problem is with the older kids ---- if they make fun of him again, approach them and correct them. Right in front of their own mother! You are your son's advocate, those boys need to be corrected. It can be done politely, yet confidently. I bet it changes their behavior ---- and they may just remember it the rest of their lives. Talk to that mother also. Do it for your son. Let me know how it goes.Anonymousnoreply@blogger.comtag:blogger.com,1999:blog-8656694.post-28157083990611905452012-10-09T05:23:46.215-07:002012-10-09T05:23:46.215-07:00I got tears in my eyes reading your post. How righ...I got tears in my eyes reading your post. How right you are! My son falls into that little percent of ones that have feeding difficulties and most days it just plain sucks. Seven years old and still on a feeding tube (although he eats by mouth), he doesnt chew, or drink enough to survive, thus the feeding tube. He is still in diapers too and most people don't get it. I have kids at my older kids bus stop who make fun of him cause he's different so I stopped taking him to see his older brothers off. It just hurt too much to see that. His mom was right there and said nothing! But despite that, he is very happy! He now has 26 words in his vocabulary and has even has some phrases! Again, this post made my day so thanks!Anonymousnoreply@blogger.com